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Beer to the Rescue

It’s Beer to the Rescue for People with Lupus

2015 Charity campaign brings award-winning brewers together to
raise funds for the Lupus Foundation of Southern California

Don’t forget, we have 2 more events at Societe this month, (8262 Clairemont Mesa Blvd, San Diego, CA  92111) June 23 and June 30 both are Tuesdays.   A portion of the sales will be donated to us from any beer you choose!

15-Sept. 5:00 p.m.
Duck Foot Brewing Co. 8920 Kenamar Dr Ste #210 San Diego CA 92121
22-Sep 2:00 p.m.
Council Brewing Co. 7705 Convoy St. San Diego CA 92111
26-Sep 4:00 p.m.
Urbn St. Brewing 110 N. Magnolia Ave. El Cajon CA 92020

More information Click Here


Bill 374

Assembly Bill 374

A Positive Step for Patient Health

AB 374 will allow a Physician to request a step therapy override from an insurer on behalf of a patient if, in his or her professional judgement, the step therapy requirement would be medically  in appropriate for that patient.

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Opportunity to participate in research AND help the Lupus Research Institute

You are invited to participate in a voluntary research survey conducted by doctoral nursing student, Pamela Coombs Delis, MSN, RN. The purpose of this research is to gain a better understanding of the relationship between health status, uncertainty in illness, and health related quality of life in adults at least 18 years of age who have systemic lupus erythematosus.  Your responses will be anonymous and the survey will take about 10-20 minutes to complete.

For every survey completed, a $1 donation will be made to the Lupus Research Institute.




Research Update: If you are 18 or over, live in the San Diego Area and have #lupus, you can help advance research for new lupus treatments! All it takes is a simple one-time blood donation in the comfort of your home with @Sanguine. When you donate, Sanguine will give you $50 for your time and donate $25 to the charity of your choice.

Sign up online at https://donate.sanguinebio.com/specific.php?id=208 or contact Katherine Li at 818-804-2462.

{Click Here for More Info}

279 Patient Groups Applaud Proposed Changes to Essential Health Benefits

Coalition Endorses Additional Patient Protections and Urges Further Action against Discrimination

Washington, DC (December 19, 2014) – Today, the “I Am (Still) Essential” coalition of patient groups sent a letter signed by 279 organizations to Health and Human Services (HHS) Secretary Sylvia Mathews Burwell applauding the recently released Notice of Benefit and Payment Parameters for 2016 which, once finalized, define Essential Health Benefits (EHB) for Qualified Health Plans (QHPs) in the future under the Affordable Care Act (ACA). The letter detailed how the many positive changes in the proposed rule will improve the plans available to patients. The letter also suggests additional changes that will increase positive patient outcomes and urges the rule to be finalized without diminishing any of the proposed improvements.

“Despite its short tenure, the ACA has already increased patient access to care,” said Andrew Sperling, Director of Federal Legislative Advocacy at National Alliance on Mental Illness. “While it is not perfect, based on the proposed changes contained in the rule, we are optimistic the program will continue to evolve to serve patients better.”

The coalition, which is comprised of groups representing millions of patients throughout the country, has been working to shed light on discrimination and barriers-to-care that patients, specifically those with chronic conditions, have encountered under the plans offered within the Health Insurance Marketplace.

The latest notice from HHS directly addresses several access-to-care issues the coalition raised in a July letter to the department.  The patient groups applaud HHS for proposing new procedures that should result in plans covering more prescription medications to meet patient needs and avenues to access medications not covered by a plan through exceptions processes.  The proposed rule also increases transparency so that enrollees have access to more information regarding providers and prescription formularies.  The patient groups also support the HHS proposal that prohibits plans from delivering medications only through the mail.

“We are pleased that many of the concerns highlighted by the patient community are being recognized and addressed by Secretary Burwell,” said Angela Ostrom, Chief Operating Officer and Vice President of Public Policy at the Epilepsy Foundation. “We urge HHS to ensure all of these positive changes are incorporated into the final rule and to implement them in 2016 and not wait until 2017.  Patients should not wait another year for these modifications to occur; they need the ACA to work for them now.”

Despite ongoing improvements that are applauded by the group, the coalition urged further action from HHS on the matter of discrimination and high patient cost-sharing for medications. While the notice from HHS declares that placement of most or all drugs for a specific condition on the highest cost tier constitutes discrimination, the coalition urges HHS to begin to enforce this and address other discriminatory barriers to care such as high co-insurance. The letter from the coalition also requests further regulatory guidance on what constitutes discrimination in the marketplace.

“The changes proposed by HHS contained in the proposed rule should have an immense and positive impact on patients’ access to appropriate care,” said Carl Schmid, Deputy Executive Director of the AIDS Institute. “We encourage Secretary Burwell to implement these positive proposals in a final rule immediately and enforce the law to end discriminatory practices.”

Groups signing onto the letter include:  The AIDS Institute, American Autoimmune Related Diseases Association, Colon Cancer Alliance, Easter Seals, Epilepsy Foundation, Lupus Foundation of America, National Alliance on Mental Illness, National Kidney Foundation, National Multiple Sclerosis Society, and Parkinson’s Action Network.

The full text of the letter to HHS Secretary Burwell, along with the full list of signers, can be viewed here or go to: http://bit.ly/1JgdqhY.

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General Donation
Make a donation in any amount to help support education, research and advocacy. With a minimum donation of $35 you will become a member of the Foundation.

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In Honor
Shopping for someone that has everything, make a donation in their name and LFSC will send your special someone a card recognizing their special event.

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Volunteer Opportunities
There are many special ways to be a part of the Lupus Foundation. All of our volunteers are special and needed. If you would like to help.

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LFSC's 2011 Volunteer
Congratulations to Gerardo Becerra who received LFSC's 2011 Volunteer of the Year Award last night at CHAD's (Combined Health Agencies) Volunteer of the Year Award Ceremony at San Diego's Hall of Champions.

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Orange Bracelet: "LIFE WITHOUT LUPUS" $2.00

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Purple T-shirt with multicolored butterfly that says: “Someone you know has Lupus.” $20.00

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If you are interested in membership with the Lupus Foundation of Southern California, please fill out the attached application and e-mail it to This e-mail address is being protected from spambots. You need JavaScript enabled to view it This e-mail address is being protected from spambots. You need JavaScript enabled to view it. or fax to (858) 278-2782.

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Support Groups

The Lupus Foundation offers several support groups around San Diego County and we are working on opening new groups in more areas.

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We are very proud to have served our sun concerned customers since 1997. Our goal is to offer you quality sun protection products with exceptional customer service and caring for your personal sun protection needs.

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